So, I go to pick up Emily from school on Thursday and her teacher says, “I’m not even kidding… best day she’s ever had!” She listened, she talked more (!!), she “sang every song and did every move.”
Way to go, Emily!! I guess that week you took off due to head lice made you miss school that much. 😉
One of the Facebook groups I’m in had a “things special needs parents never say” thread. These are the ones I related to most.
I think every parent to a special needs child is (or will be) heartbroken by the words in this letter. And pretty much all of us who have blogs are likely to make a post like this one. It’s one of those things you just have to comment on when you can relate to it.
I’ve decided to make a post comprised of my initial reactions to seeing this letter. First of all, here is the tweet that started the process of this letter going viral. There’s also an image of the letter itself, if you have the stomach for it.
I can imagine if you’ve just read it for the first time, you have a lot of thoughts. Let me share with you the ones I’ve had, in chronological order. 😉
Emily’s language is largely scripted/memorized, as most of you know. Well…
Now she’s stumbled across some less than kid-appropriate videos on YouTube and memorized some choice phrases. Often after hearing them once!
What do I do? The more I protest, the more she seeks them out, even to the point of hiding from me to watch them.
It seems that when Emily makes gains in one area, another suffers.
For instance, she’ll pick up new “owned” words (or suddenly pronounce things better), but she’ll start hitting more.
She’ll learn a new skill, but seemingly lose another.
I realize the Autistic brain is “wired” differently, so I’m guessing it has something to do with that. One part of the brain is more active, so another either dwindles in activity, or … misfires, so to speak.
Anyone else have opinions or input on this?
So, Emily had her last “official” day of school yesterday (she’ll start Extended School Year/Summer School on June 10th). Her teacher sent home a printout with updates on her first seven IEP goals… she’s met the STO (short-term objective, I think it means) on six of them, and is making progress on the seventh!
Today was pretty good. We went to two places I feared may cause a meltdown and Emily handled both like a champ. She was a bit… “stimmy” at one, but overall did great.
I’m so proud of her. 🙂
We’re making grain-free peanut butter cookies now, which I’m sure she’ll be happy about.
I’ll write more about it soon (after I’ve had some sleep), but for now, I’ll just say it went well.
Emily’s teacher really seems to care about her. It’s very sweet. The whole team is very dedicated to truly helping her reach goals.
Also, I discovered the lady I’ve pretty much bonded with at the school gate during drop-off and pick-up is going to be Emily’s Kindergarten teacher. Yay! Emily seems to like her, too, so awesome. Ahead of the game!
I’ve said a lot of “I wish…,” “I hope” and “I pray” lately. I thought I’d make a list.
Maybe some will come true and I’ll be able to remind myself where we started from.