Adventures With Autism and Adopting a Healthier Lifestyle

Posts tagged ‘pride’

It’s her party and I’ll join if I want to!!

So, basically, what I’m gathering from various “experts” I’ve come in contact with, is that I’m not supposed to play with Emily.

I am never to enter her world, but rather, she must be dragged, kicking and screaming, into “our world.”

Everything is a “behavior” that needs to be corrected, addressed with some type of therapy and eliminated.

Really?

Why is everything my kid does related to Autism? Why is every moment of every day supposed to be spent changing things… changing… her. Don’t most kids in her age group play? Aren’t most parents allowed to play along?

For example, just yesterday, I was once again reprimanded for “playing along” with Emily’s scripts (or delayed echolalia, if you wish).

Yes, I’m fully aware of the irony/hypocrisy of listing echolalia as the behavior to target, then complaining when it’s targeted. Just… go with it.

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Walking the Tightrope

For me, being the parent of a child with Autism (actually, let’s use “Autism parent,” for short) feels like walking a tightrope.

I imagine being a parent to anyone probably feels like that sometimes. Trying to balance who they are by nature with what the world expects of them. What they desire to do and be with what is “socially acceptable.”

For example, as my husband and I are going through various channels to get Emily services, I start to feel twinges of guilt and worry. How much is too much?

At what point does it go from trying to help her to trying to change her?
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