So, basically, what I’m gathering from various “experts” I’ve come in contact with, is that I’m not supposed to play with Emily.
I am never to enter her world, but rather, she must be dragged, kicking and screaming, into “our world.”
Everything is a “behavior” that needs to be corrected, addressed with some type of therapy and eliminated.
Why is everything my kid does related to Autism? Why is every moment of every day supposed to be spent changing things… changing… her. Don’t most kids in her age group play? Aren’t most parents allowed to play along?
For example, just yesterday, I was once again reprimanded for “playing along” with Emily’s scripts (or delayed echolalia, if you wish).
Yes, I’m fully aware of the irony/hypocrisy of listing echolalia as the behavior to target, then complaining when it’s targeted. Just… go with it.
Sometimes I am really tempted to say “thanks for the diagnosis, now we know what we’re dealing with, we’ll take it from here.”
It’s all so overwhelming: the paperwork, the phone calls, emails, “snail” mail, appointments, meetings, observations, evaluations… it never ends.
Right now, for example, I’m in the midst of a parent training for ABA and the homework that comes with it. This is while trying to get our affairs in order to get Emily in school (which involves a list of requirements of its own, including an “observation” in our home, which involves another marathon cleaning session).
This is, of course, in addition to the day-to-day struggles that come with being an ASD parent.
Also, I’m in the midst of a Medical Assistant training that requires a LOT of study. I am getting by, basically by doing only what is graded. I don’t know half the stuff I need for the midterms next week. If I don’t learn this stuff, I could harm people!
Oh, and did I mention, Emily has a cold that seems to be heading to bronchitis territory? Yeah. That too.
Can I take it all back? Say my kid is… eccentric… and call it a day?
I could really use a nap.